Kristen Powers has always refused to believe that a person needs a car, money, or a job to make a difference in this world. In 2003, when Kristen was nine years old, her mother was diagnosed with Huntington’s disease, an incurable brain disorder that causes its victims to lose the ability to walk, talk, think and/or reason. It eventually leads to death.
As Kristen began to regain her footing and adjust to the reality of her mother’s illness, she received a second blow. After doing some research, Kristen discovered that she and her brothers have a 50% chance of inheriting the same disease that their mother would die of in January 2011.
Now that Kristen has recently turned 18 (the legal age to be genetically tested), she has started her newest venture. She is creating a documentary following her genetic testing for Huntington’s disease, as well as the challenges youth are faced with while living with this disease. Currently in the fundraising and production phase, Kristen’s documentary fundraising campaign raised $10,000 for Twitch in nine days ($30,000 to date). She hopes that this documentary will spark a national conversation about a disease that has often flown under the radar.